Highlights
Bruce cystic fibrosis (CF)
Bruce is a 13-year-old boy with cystic fibrosis (CF). He lives with his parents and two younger siblings—Anna (9 years old) and Alicia (6 years old) in Merredin in Western Australia. He was diagnosed of CF very early in life and has since been attending the Perth Children’s Hospital (formerly Princess Margaret Hospital) for tune up when CF symptoms exacerbate. Apart from his CF, Bruce also has a history of procedural anxiety and pancreatic insufficiency as a complication of his CF. Bruce has been scheduled for tune-up and he is expected to be in the hospital for a minimum of one week. Bruce is comfortable with receiving treatment at home, but because of his blocked Peripherally Inserted Central Catheter (PICC) and exacerbation of CF symptoms, he was brought into hospital for insertion of a PICC and tune-up. It took a lot of effort from Bruce’s parents to get him to the hospital as he was very reluctant. He has since been moody and withdrawn in this admission. His parents do most of the talking on his behalf. Bruce has been in the ward for a day. When you went in to check his observations, he was alert and they read: Temperature 38.7oC, HR= 120 beats per minute, Oxygen saturation 95% at Room Air, RR= 26 breaths per minute with mild distress, BP = 100/70mmHg. He stated his cough has improved since he commenced antibiotics 24 hours ago. He appears fatigue and not interested in eating. Bruce’s parents have been very supportive with his CF cares.
Based on the above scenario, discuss the pathophysiology, management and health promotion for Bruce and his family.
Your assignment should include the following:
1. An introduction summarizing the case study.
2. Discuss the pathophysiology of the presentingcondition.
3. Discuss the assessments (Paediatric Assessment Tool and/or PrimaryAssessment Framework or CEWT) you will undertake to prioritize and manage care for Bruce.
4. Describe the nursing management of Bruce’s condition incorporating the child and family centred care model.
5. How will you prepare Bruce for transition into adult health care?
6. What discharge education and health promotion will you emphasize?
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