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Hsc203: Indigenous Health Perspectives - Dion Beasley Case Study Assessment answer
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Code: Hsc203
Indigenous Health Perspectives Assessment answer
Assignment Task: This assignment is about 28-year-old Indigenous Alyawarra artist Dion Beasley, whom was born with muscular dystrophy (MD) and who is also profoundly deaf. This narrative will include Dion’s personal health journey and how his health has impacted on him as an individual, while also reflecting on how his health issues have impacted on his family and the community in which he lives in. Dion was born in Alice springs on the 7th of July 1991 and spent most of his early childhood in the remote community of canteen creek. As information of Dion Beasley and his health issues are limited, I am unaware of the type of (MD) Dion suffers from and if he was born deaf, but the heath description of MD is defined as on-going weakness with a loss of muscle mass caused by a set of diseases ("People with progressive neurodegenerative diseases in the NDIS", 2016). There are many forms of MD the most shared is Duchenne, Becker and various types of Limb Girdle. Research has suggested that the more common forms of MD are in boys and signs typically appear in early childhood, all other forms of this condition do not appear until adulthood (Lue, Y., Chen, S., & Lu, Y. 2018). Unfortunately, all people with this condition will continue to suffer a loss of muscle weakness, this can lead to complications and the loss of movement in their limbs, trunk or neck. Furthermore, MD can lead to other related health problems such as respiratory insufficiency, due to on-going muscle weakness in the lungs (Lue, Y., Chen, S., & Lu, Y. 2018). As Dion is also profoundly deaf he has limited communication skills. Interactions are vital for everyone’s development as it gives people the ability to interact socially and is a way of creating friendships (Horton, 2015). Dion’s was born into a hearing family, as a result he faced many challengers in childhood. Communication can place a barrier between the deaf child and their parents, this can also follow into language delays (Batten, Oakes & Alexander, 2013). For that reason, Dion’s family may have found it more difficult to raise a child with serve disabilities. Indigenous families that live in remote areas across Australia require positive relationships and support with medical clinicians (Munns & Walker, 2015). Cultural and social influences along with economic issues may have affected Dion's medical treatment as a child. While investigating the conditions of MD, and people who suffer from being deaf, I did not find a link to suggest that it is more prevalent in the Australian Indigenous population compared to the non-Indigenous population. MD is a genetic mutation condition, therefore parents who carry the disease have no knowledge they are carries until a child is born with the condition ("People with progressive neurodegenerative diseases in the NDIS", 2016). At the age of 12 Dion relocated to tenant creek to live with his extended family. While attending school at this time, Dion meet his disability carer Joie Boulter. Since Dion is deaf he had no way to communicate with his new teacher. Joie's aim was to connect with her new student so she arranged to communicate through AUSLAN, an Australian sign language organisation, this was a task that both Dion and Joie learnt together (auslan.org.au, 2019). At around this time Joie began to recognize Dion would try to converse with her through his drawings, and this is when Joie recognized that Dion had a talent ("Centre for Indigenous Story", 2019). Unfortunately, Dion’s living circumstances along with health issues, school life and caring for Dion. had now impacted on his extended family members. A descion was made by Dion’s grandfather that he would now reside with Joie and her husband Tony Boulter. This idea was introduced to Dion at the age of 23. Dion’s grandfather realised to live a healthier lifestyle Dion needed to move from his current living situation to a more stable regime to get the best quality care that was needed for him, furthermore as a result of Dion’s health issues his independence in life was also limited. To maintain a healthy life style Joie reached out to The National disability insurance scheme (NADIS). NADIS is a scheme that provides people with disabilities the assistance through services that connect to their wider community in which they live. Individuals along with their carers can connect to local services such as schools, doctors, and support groups along with assistance in their day to day living tasks. The service also offers employment opportunities that support people with disabilities move into the workforce (NDIS.,2019). As one of NDIS early launch sites was in the town of Barkly, Dion and his new carers started the programme. Additionally, the scheme provides government support in each State and Territory to help carers and people with a disability with information and materials ("Dion, Cheeky Dogs, NDIS", 2016). As a result, NDIS provided Dion with his own motorised scooter so he can get around with his daily activities. This opportunity of having his own transport has now given Dion the confidence to gain access with organisations outside of his community. Dion now participates in social and community activities in which he did not have access to before. Dion also rides along the streets to his grandfather’s house and then goes and feeds the cheeky dogs in his community, a task he loves to do every day. ("Dion, Cheeky Dogs and the NDIS", 2016). Dion’s Northern Territory (NT) community in which he lives are passionate in supporting Dion’s talents, while also improving “Closing the Gap” in indigenous health ("Closing the Gap", 2019). A programme was created jointly by the NT general practice education (NTGPE) along with Dion Beasley himself. The programme is to encourage general practitioners to come and train and work in the NT, while also establishing a sense of community within the area for all NT Doctor’s. Interstate Physicians try to accomplish this task by wearing Dion’s cheeky dog t-shirts and having conversations about lifestyle and working in the NT community (Cockayne, 2013). To support all Australian Indigenous people’s health, community-controlled organisations and allied health professionals need to work in partnerships and place a greater emphasis on community benefit programs (Farnbach, Eades & Hackett, 2015).University: Charles Darwin
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